The International Lipoedema Association (ILA) was proud to be represented at the 13th International Lymphoedema Framework (ILF) Conference, held together with the 10th ITA.L.F. National Congress on October 28-31, 2026 in Rome, Italy. Several ILA Board members contributed to the scientific programme and shared their expertise with an international audience of 628 attendees from 23 countries.
The congress brought together clinicians, researchers, healthcare professionals and patient representatives to explore the latest developments in lymphoedema and lipalgia syndrome (formerly lipoedema).
ILA Board members Robert Damstra, Christine Moffatt, Håkan Brorson, and ILA President Gabriele Erbacher contributed to the scientific programme with presentations on the psychological and clinical aspects of lipalgia syndrome (formerly lipoedema), holistic assessment, interdisciplinary treatment, and developments in lymphoedema care.
Their participation provided an important opportunity to bring ILA perspectives into the international discussion. ILA President Gabriele Erbacher comments:
“I am delighted to see that different medical societies have reached a shared understanding at the International Framework Conference in Rome: the term ‘lipoedema’ is misleading and does not accurately reflect the clinical presentation of the condition.
Moving towards terminology that truly reflects the clinical characteristics is an important step forward. It will help strengthen scientific understanding, improve diagnostic precision, and ultimately support better care for patients.”
Events such as the ILF Conference are an important part of building stronger connections between research and clinical practice. By bringing different disciplines and perspectives together, the congress supports the shared goal of improving the understanding, diagnosis and care for people living with lipalgia syndrome (formerly lipoedema) and lymphatic disorders.
ILA thanks the International Lymphoedema Framework, fellow speakers and all participants for an inspiring congress in Rome.
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ILA welcomes clinicians, researchers and other professionals with an interest in lipalgia syndrome (formerly lipoedema) to join our growing international network. As a member, you can connect with colleagues across disciplines, stay informed about developments in the field and contribute to advancing knowledge and care for people living with lipalgia syndrome (formerly lipoedema): Become a member
